Living With a Child With Autism05/27/11
FRIDAY, May 27 (HealthDay News) -- Julie Wismann knew her young
daughter was troubled.
The girl had been diagnosed with epilepsy at age 1 and put on
medication, said Wismann, 34, of Centennial, Colo. But then the
youngster, Kara Reno, began losing her words.
"At first we thought it was a speech impediment of some sort," her mother said of Kara. "She went from saying 50 words to no words. She was basically becoming developmentally disabled with words. She wasn't accruing as many words as she should have at that point, and the words she did have weren't forming well. It took people who knew her to understand what she was saying."
There were other worrying signs of behavior. For extended
periods, Wismann said, Kara would put her hand in front of her face
and watch it move back and forth. She wouldn't interact with kids
her age. She didn't play-act with her Barbie dolls, instead just
holding them in front of her face and looking at them.
At age 2½, doctors diagnosed Kara with autism.
Wismann said she had a hard time accepting the diagnosis. "I was
in denial for four years, maybe," she said. "It was extremely
She took Kara to a behavioral therapist and a communication
therapist. She tried homeopathic remedies. She even considered
taking the girl to chelation therapy, which involves injecting a
chemical into the body and has been rumored to help children with
autism. "I was going to try chelation at one point, but then I
heard some other kids with autism died because it wasn't performed
correctly," she said.
The only thing she said she's found that helps her get through
to Kara is music therapy. "She just engages more," Wismann said.
"Instead of being in her own space, if you're more singsong-y when
you're interacting with her, she seems to engage more and want to
be interactive with you."
Now 10 years old, Kara is considered to be on the developmental
level of an 18-month-old. "She's now kind of diagnosed on the more
severe part of the spectrum," Wismann said, noting that her
daughter has to use an adult stroller when out in public places.
"The sensory overload of trying to walk herself through someplace
like a store overwhelms her."
Kara is nonverbal and does not respond to sign language. She
communicates by reaching her hand toward something she needs, but
even that is just fleeting.
"Everybody who is in Kara's world has pretty much had to come in touch with their sixth sense, to intuitively figure out what she might need," Wismann said.
And Kara's condition has put a strain on the whole family, she
added. Wismann said she's had to work hard to make sure Kara's
younger brother, Harley, gets his share of attention. A year
younger than Kara, Harley is a bright and healthy youngster, his
"He's had to learn how to adapt," Wismann said. "He's learned that if we go somewhere and Kara has a fall-out or a meltdown, he knows he has to drop whatever he's doing so we can leave." Harley's also learned to be more independent and to take care of himself if his parents have to rush Kara for treatment or give her more attention.
Kara now attends a special needs school that's using applied
behavioral analysis as its teaching method for Kara. The aim of
this type of therapy is to teach useful skills that build upon each
other. Wismann said she is also considering trying another form of
therapy, called relationship development intervention, which tries
to gradually and systematically develop the tools and motivation
for social interaction.
"After all these years, I think I've finally come to terms with who she is," Wismann said. "I guess I have accepted it. Before then, it was just push, push, push to try and find a way to stop her downward spiral."
"I'm still waiting for her to say 'momma,'" Wismann said. "She'll mouth the word maybe once every six months or so, but she never says it. It's hard to tell how much she comprehends, and how much she can give."
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